We seek a remarkable set of abilities in an appropriate individual for this unique opportunity as Programme Lead - Rare Therapies Launchpad on a 6 month FTC to collaboratively sculpt and execute this groundbreaking venture into pioneering rare therapeutic solutions. At the end of 6 months, the Programme Lead will transfer to the new entity.

Your role will include but not be limited to the development of the structure, function and governance of a pilot project, working closely with the Board of Directors of the bespoke Community Interest Company (CIC), experts and the wider RTLP consortium, plus a range of stakeholders within the ecosystem (as directed by the Board).

The key accountabilities will be:

• Working with direct stakeholders, help shape and deliver a pragmatic and ambitious business plan for the programme that fulfils the goals of the pilot and sets out a multi-year strategy for the project.
• Establish clear governance, decision-making process and ways of working, agree with stakeholders and implement.
• Work with the comms subgroup to create and maintain a clear communications strategy, that responsibly delivers visibility to the project. 
• Set up a clear roadmap of deliverables based on the principles and ambitions of the new pathway with the creation of relevant workstreams.
• Be responsible for the day to day operational and administrative running of the pilot including balancing the needs of competing stakeholders and delivering and reporting on the workstreams.
• Support and organise project workshops and meetings as required.
• Manage and ensure good governance and compliance with all relevant requirements including budgets, business planning, risk management, monitoring and control.
• Set up and provide reporting on major programme deliverables with guidance from the Board and wider members; ensuring these are included as a central part of operations, considered in governance, and risks to delivery escalated. This will include, but won’t be limited to, workstreams on ethics, communications, regulatory, reimbursement and the process for participant selection